Showing posts with label chronic facial pain. Show all posts
Showing posts with label chronic facial pain. Show all posts

Saturday, April 02, 2016

Your Life, Your Choice

Since April is "Your Life, Your Choice" month, I felt the need to write a wee blog post about it. Actually, I didn't feel the need at all.....I chose to write it. (Big difference!)

We all go through life making choices. What time to set the alarm? Breakfast or no breakfast? Tea or coffee? Chocolate or......chocolate? Sometimes the choices are simple. Some choices might be easier to make than others.

My Mum used to tell me that I had a good attitude to life. She said that no matter what life gave me, I always tried to smile and just get on with life.

I turned fifty last month (not really by choice๐Ÿ˜ฎ), but I can look back on my life and I realise that my Mum was right. I do have a good attitude and I am quite proud to admit that.

I try to find the positives in everything. When I find only negative, I try my hardest to turn it around. I try to find something to feel happy about. Something to make me smile. Something....anything which can make a difficult situation a wee bit better. And there is always something.

☔️ Caught in the rain on way to the car - thankful we have a car.
๐Ÿ“Not a single bit of chocolate in the house - but I have fruit!
๐ŸŒŽ Can't afford to go on holiday - have you seen the views from my house?

Obviously those are trivial examples, but they are real examples. For me, it seems natural to find positives. But I know it's not the same for everyone. However, it is believed that people have the power to choose whether to live with negativity or positivity.

It has long been established that positive thinking can lead to a happier, more contented life. For people living with a chronic illness of any kind, it is believed that a positive outlook can also help them to cope with and manage their illness.

I would say that in my case, that is definitely true.

When faced with daily health issues and chronic pain, I personally believe that 'choosing' positivity is so important.

I wake up in the morning and don't know if my back will cope with getting out of bed. My husband has to help me with some of my clothes, because I can't manage myself. Am I going to be able to make myself a cup of tea, or do I need to rely on my husband to do that too. My face hurts the minute I wake up. I don't know if the pain from it will stay at that level, or if it will get worse throughout the day. Will I struggle with food? Will I be able to clean my teeth? Will I need to spend most of the day in bed because of pain in some part of my body?

I could easily wake up in the morning and think about those things and be slowly dragged down into a deep black hole. But I don't want to be in that hole and I don't have to go into it. I have a choice.

Instead, I choose to be grateful. I choose to be optimistic. I choose to smile. I choose to be happy. It's my life and I choose to focus on positivity. 


I wake up and say, thank goodness I have a rail by my bed to help me get up; I'm glad my understanding husband is here to help me throughout the day; I enjoy porridge, soup, pasta and other soft food which is easier to eat; I have a dog who laughs as he bounces through to see me when he decides I've stayed in bed too long; a cat who seems to sense when I'm having a bad day and sits by my side.

Do those things take away my pain? No, of course they don't. But those kind of things help me cope with my problems. My life's not a bed of roses, but those positive thoughts help to put a smile on my face and get on with life, just as my Mum used to say.

Everyone has choices in life and there are always positives to be found.

It's up to us to find them.

#YourLifeYourChoice





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Good Pain

Friday, October 25, 2013

SPAM

Picture from the Official UK Spam website
www.spam-uk.com
I hate spam. Always have.

That pink chopped ham and pork which comes in the tin whose purpose in life is to cut half your fingers off...Sorry to any Spam lovers out there, but that stuff just makes me go eeeuuugh.

But my blog post isn't actually about that kind of Spam. It's about the email type of spam. The equivalent of the junk mail which the postman brings on a daily basis. It all gets kind of annoying. I don't want to buy watches, handbags or even those little blue pills. And I don't want to give anyone my bank details so that they can deposit half a million US dollars into my account. I don't believe the story that Great Auntie Doris has left me all that money, nor do I believe I can save the computer world by forwarding on a message about a fake virus. But those are the joys of computing......

Spam on Skype is a little different. Messages, normally from a General in the US army (yeah right!), who is just back from serving in Afghanistan. Wanting some friendship. Oh, and I was nearly always told that I have a friendly face and a lovely smile.

I actually laughed when I received those messages. My Skype profile picture is just a design, there is no photo showing a friendly face or lovely smile. So Skype spam gave me a laugh, but I began receiving the messages like this every day, and they became tedious.

However, I finally found a way to stop them. Went into Skpe profile and unticked the box "female". Simple as that. Not a single message since.

Now on to Facebook. I, along with many others, get the occasional private message turning up from some strange stranger looking for lasting friendship, and they just happened to come across my profile. And guess what.....they are also Generals in the US army who have just been serving in Afghanistan. How boring, can't they think of some other occupation?

Anyway, they are easy to deal with. Hit report....they're gone.

However, the other day, I received one of the above private messages on Facebook. The usual kind of message, but he had also poked me!!! For those who don't use Facebook, you can click a button to poke a friend. A friendly poke to say hello. I'm not overly keen on friendly pokes. I have sore ribs, pokes could hurt.

But this poke was from a stranger. A stranger! Poking me!!

That's worse than spam.  It's even worse than Spam!

Eeeuuugh!!!



Thursday, August 22, 2013

TN Awareness

When I was a young girl, I was forever writing to television shows and magazines, normally entering competitions, but never got a reply.

These days, I am forever writing to numerous television shows, newspapers and magazines trying to promote TN awareness.  I still don't get replies. But I will keep writing.

It is so difficult trying to promote something that nobody seems interested in. Even the World Health Organization are not interested in it. However, there is a petition to try to change that. If you haven't heard of the petition, you can sign it here. (It costs no money to sign.) If W.H.O. actually become interested, it could change things.....there could be funding for education, awareness and even research. If you haven't signed it, please do so (even if you don't have TN).

There is so much going on at the moment to do with TN Awareness. There are more and more blogs appearing, so many support and awareness groups on Facebook.

A friend will be doing a Twitter chat about TN with Treatment Diaries on Twitter on the 27th of August at 8pm ET. If you want to read about it, you can check it out here. Being in the UK, I might not manage to watch it live, but hopefully will catch up the following day.

This year, there will be a TN awareness day. For the first time ever.....an International Trigeminal Neuralgia Awareness day on Monday, the 7th of October.

Our own End Trigeminal Neuralgia  awareness page has grown more than we ever thought it would, with just under 2000 followers at the moment. We also have a private support group on facebook which is also growing, and of course, we have our End TN blog and our videos on YouTube  We're on Twitter, Tumblr and Pinterest. We are about supporting people, both sufferers and caregivers, creating awareness, and making information files for people. If you haven't looked before, you should check the Notes section on the awareness page.

We pretty much have social media covered. It's mainstream media which we have a problem with.

What is it that decides if a story is worthy enough to make the news, or a national newspaper? How do people get a story on to a TV show, or even a magazine?

Trigeminal Neuralgia is a horrible, cruel condition. The awareness is essential. If you are reading this, and you have any suggestions how we can get awareness to a wider audience, please let us know.