Showing posts with label cold. Show all posts
Showing posts with label cold. Show all posts

Monday, May 07, 2012

Food Glorious Food

A few days ago, my sister asked me if I wanted to join her for lunch today. She was going to be spending an afternoon at a health spa near me with a group of friends, and before it, they were all having lunch together at a restaurant close by. She asked if I wanted to join them there for lunch.

I never really know how I am going to be feeling from one day to the next, and I have come to really hate making plans in advance. Besides, I kind of panicked at the thought of going for lunch with eight people, most of whom I don’t know. And, I have to eat so slowly because of my face, I would probably still have been eating when they were all having to leave for their relaxing afternoon at the spa. I don’t know what would be worse - having lunch with people I don’t know, or being such a slow coach and sitting in a restaurant finishing my lunch myself. So I opted out. I did however enjoy a plate of Ian’s homemade minestrone soup, which is delicious, so don’t go feeling sorry for me.

Eating, when you suffer from trigeminal neuralgia can often become a huge problem. Even drinking can be difficult. Nothing too hot, nothing too cold, food can’t be too hard, too crunchy, too chewy. Some things are just a definite no.
This isn't Ian's ministrone by the way. I have to say that I used
the photo from a recipe on

I love soup and I practically survive on it. I’m not complaining - I really do love soup. Ian makes most of our soup, and he does make a really good pot of soup, so we always have containers of it in the freezer. But I do actually enjoy the trigeminal neuralgia diet, also known as the ‘soft food diet’. Soup, mashed potatoes, rice pudding, custard etc.

Of course, I do miss some things, especially ice-cream, but that’s just one of those things which I have come to accept. Eating ice cream would be like me going out in a freezing cold wind with no scarf covering my other words, a bit stupid. So no point in crying over what I can’t have.

I suppose it’s just like life really.

Sometimes we waste too much time yearning for the things we don’t or can't have, instead of appreciating the things that we do have. So every time we wish for something, maybe we should take a step back and just look around at what we do have instead.

Wednesday, May 02, 2012

Fairies Have Limits.....But I Don't

Anyone who is my friend on Facebook would have known that over the weekend my pain had been bad again. I did something I don’t normally do, and I actually broadcast it as my facebook status. Well, not quite in so many words, but I’m sure they figured it out.

What I wrote was this -

Joke for the day

A fairy suddenly appeared in front of three women waving her magic wand. "I have three wishes," she said, "you can each have one."

The first woman quickly said that she wished she could have lots of money. Immediately, her mobile phone rang with a text telling her she had all six numbers in the lottery.

The second woman said she wanted to find a man who would love her forever. Instantly, a man appeared with a dozen red roses professing his undying love for her.

The third woman was in so much pain that she could barely talk. "Money doesn't mean anything to me. I already have a husband who loves me. But I live with Trigeminal Neuralgia, just like thousands of other people world wide. So my wish is that you could take away this disease from everyone." The fairy waved her wand. Nothing happened. She tried again. Still nothing. She called fairy headquarters to ask what was wrong. They told her that the third wish had been just too much to expect. Even fairies have their limits.

The moral of this is that you can make a joke out of a lot of things in life. But living with a disease like Trigeminal Neuralgia is no joke and never will be a joke.

Thankfully, I did perk up a bit the next day and I found my smile again. I hate it when I lose that. Having the pain is bad enough, but when I lose my smile too, that’s a whole other story.

So you will be pleased to know that the smile is firmly planted on my face and I am really trying to keep it there. Life definitely seems better when you smile.

Fairies may have their limits, but that doesn't mean that I need to have limits as well. In fact, I think I need to try to push my limits sometimes.

Yesterday, I tried to do that.

I actually drove to town to collect a prescription for Ian who has a chest infection. This was the first time that I have driven for weeks. If my pain is at its worst, I just wouldn’t drive. And some days, the effect of my tablets make me feel as though my head is full of cotton wool, so on these days, I definitely wouldn’t drive. But yesterday, my head felt clearer, so I knew I would manage the twenty minute journey.

I picked up Ian’s prescription, then nipped to the supermarket for a few things. Well, trust me, I landed there just as the local primary schools were coming out. All the Mums had also decided to nip to the supermarket for a few things with all their kids in tow. The noise was crazy. I suffer from constant ringing in my ears. Like fuzzy electricity, buzzing away inside my head all the time. I don’t know if it’s just another one of my ‘things’, or if it’s just another side effect of my medication. But all the noise inside my head plus all the noise of squealing children in the supermarket nearly had me going demented. By the time I got to the cereal aisle, I was ready to scream. So I quickly paid for my shopping, and headed home.

Of course, by the time I arrived home, I was shattered and went straight to bed for a sleep. But I was pleased with myself that I had actually gone out and done something for a change.

I had pushed my limits a little bit.

I know a twenty minute journey to the shops means nothing to most people, but for me, that was quite a big deal. My face is worse today from the cold yesterday, even though I was dressed as if it was the middle of January and not the first of May. That cold was enough to make my face worse. But I am still glad that I went out. I achieved something.  I pushed my limits and it made me feel good.

Tuesday, March 13, 2012

Word Of The Day - JINX

And it wasn't used in Scrabble.

No, quite simply, it's me. I am a jinx.

Well, I had a few better days since my last med increase. My GP increased my Tegretol, and prescribed it in the slow release form. After a couple of weeks, I felt a difference. In fact, I was starting to feel like I could get my life back. I had less pain in my face and it felt so good. I even managed to do some drawing a few days ago. The pain hadn't gone, I don't expect it ever to do that, but it was better.

My only problem......I actually had the audacity to tell people.

I wanted to share it. I wanted to share it with people who care about me. I wanted to share it with people with the same problem, in the hope that maybe my combination of meds could help them.

Of course, after telling people, the pain has come back with a vengeance.

I suppose it's just like saying that we are having lovely weather, then we get rain the next day.

I just hope that this little nasty spell is just a little glitch, and I'll get my good days back. Please.....I did enjoy them. I didn't abuse it. I didn't go out in the cold or anything like that. I didn't eat ice-cream.

But, hey, it was nice while it lasted!

It was good, a few days with a bit less pain
But maybe I should have used my brain
But instead, I was happy, and wanted to share
So I told some people, the ones who care
It's happened before, so I should know better
But, no....I had to spell it out, letter by letter
Like I said, I was happy, and I wanted to share
Then it comes back like a's so unfair!
I shouldn't have said anything, that's what hubby thinks
And I have to agree.......I am a JINX


Saturday, February 04, 2012

No Business Like Snow Business

Feeling a bit brain dead this morning. I had an argument with hubby earlier about what day of the week it was. I was convinced this was Sunday. Hmm.....had to look at the computer to check. Then had to tell him he was right.!

It's the tablets. They get the blame for everything.

So.....Saturday the 4th of February and it seems like winter has decided to make an appearance today. A little snow....but it is absolutely freezing cold. I'm glad we don't need to go out. I would suffer going out in that cold.

Hopefully we don't get too much of that cold, white, fluffy stuff. But there is one member of the household who absolutely loves it. The minute he sees it, he is desperate to get outside, get his nose into it and kick it up with his heels. No, not Ian. It's the dog. Red absolutely loves playing in the snow.

A couple of years ago we had a really bad winter here. We were well and truly snowed in. But Red thought he was in heaven. We couldn't get out to get milk or bread,  but our dog was the happiest dog on the planet. This is a photo of him that winter. I'm sure you can tell that he was kind of happy.

I just wish I didn't have TN - I'd probably be out there throwing snowballs for him.

Friday, November 25, 2011

Hibernation Time

Well, it's official.....winter is upon us.

It's cold outside (now I've got that song in my head!) and we have snow. Mostly rain, but we have had snow.  And it is extremely blustery outside. Time for me to hibernate I think.

I can't say I've ever liked cold weather. I've always had poor circulation, so my hands and feet have always objected. The rest of my body wasn't to keen on it either, but trigeminal neuralgia absolutely hates the cold. Even a blast of cold air from the freezer makes the pain worse.

I now have a lovely collection of hats, scarves, snoods and hoods to keep the cold off my face. Oh yes, I even have a tight knit, double layered, zip front balaclava. Only my eyes are exposed. (I don't suppose I would get very far if my eyes were covered!) Anyway, so far I have only worn it when going from the house to the car, then from the car to the house. I would need to pluck up a bit of courage to wear it in the supermarket. Or the bank. Actually, I don't think I'll ever chance that. The words balaclava and bank just don't seem to go well together.

As it is just now, I walk about holding my scarf over my face and have my hood up on my jacket. I do get some strange looks while walking about covering my face. But, hey, there comes a stage in your life when you have to stop worrying about people giving you strange looks. Maybe I should hang a placard around my neck to let the world know that I have Trigeminal Neuralgia, in case people think I am trying to hide my garlic breath or something like that.

I really don't intend on going out much through the winter. No matter how well covered up I am, I still need to breathe. That cold air shoots right up my nose and feels like electricity hitting my brain. Breathing through my mouth would be even yes, I think it is time for me to hibernate.

Anyway, I really must go.....but baby, it's cold outside ♫♫♫