A little prose, a little poetry, but mostly rambling. Probably quite a lot of rambling. Could be about my lovely life in sunny Scotland. Could be about living with chronic pain. Actually, my ramblings could be about anything at all....
A couple of days ago I came across an article in the Daily Mail....a health expert
has been doing studies and came to the conclusion that sugar is bad for
us. Duh! Think we all know it's not the best thing for us, but, in
moderation I'm sure it's ok.
But, why are health experts doing studies on things like this?
And, why are newspapers writing about them?
There are countless illnesses and conditions which are forgotten about.
Where are the health experts? Off discussing how bad a mars bar is for you?
Where are the Newspapers? The television and radio news?
There are no statistics about Trigeminal Neuralgia. And no cure.
Our stories are obviously not interesting enough for the media. Stories of children living with this constant pain, stories of people being imprisoned in there homes because of the pain, stories of people losing their jobs, their homes, their partners....their lives.
Why is it that the only people fighting for awareness are the sufferers and carers themselves?
I have written countless letters to newspapers, tv & radio, but get no reply. But after seeing that story about the dangers of sugar, I wrote a letter to the newspaper saying more or less
what I said above. I did get a reply saying it was being passed on
to the Editor. I don't think for a minute that it will make anyone publish a story about Trigeminal Neuralgia, but at least the letter was read...and who knows.
But if any
of you come across stories like that, and you say, that's ridiculous.....they write about that, but don't bother with TN or other serious, but not talked about condition.....write to them. Tell
And if anyone is interested in the article about sugar....it's here
And, if you are interested in writing to the Daily Mail with a similar message, you'll find the email address here